Okay, so through all the emails, the going online to decipher the terminology and going online to translate medical terms....this is what we've gathered so far:
Wayra was going to get a bone marrow test of some kind today, but it was a no-go (i think because they didn't have enough to do the test). So, they are going to take another sample and do the test tomorrow morning. Then, tomorrow afternoon she will go to another hospital where they will do a Scintigraphy. This is defined as such: the production of two-dimensional images of the distribution of radioactivity in tissues after the internal administration of a radiopharmaceutical imaging agent.
The "test" on the tumor itself came back with this: the tumor is 11x9.5x9.5 cm. It (seemingly) is attached to the spine (?) and heading towards the umbilical region. THe left Kidney is displaced (moved?), but all other organs seem to be in the normal range. The results came back with a diagnosis of "Neuroblastoma". It is defined as such: It develops from the tissues that form the sympathetic nervous system (the part of the nervous system that controls body functions, such as heart rate and blood pressure, digestion, and levels of certain hormones). Neuroblastoma most commonly begins in the abdomen in the tissues of the adrenal gland, but it may also occur in other areas. It can spread to the lymph nodes, liver, bones, and bone marrow. The cause of the tumor is unknown. Neuroblastoma is most commonly diagnosed in children before age 5. The disorder occurs in approximately 1 out of 100,000 children and is slightly more common in boys
After treatment children under the age of 2 have a 70-90% chance of survival, while children over the age of 3 have a 30% chance. This, of course, is dependant on what stage the child is in. From the sound of things she is in a Stage 3, possibly.
My mother has forwarded information from St.Jude's hospital to my aunt Lucy to forward to Wayra's parents. I am hoping Wayra's doctor sees this as an opportunity and will contact St. Jude's doctors for a referral. If the doctor refers her to St. Jude and the St. Jude doctors accept her, they will bring her to the States for treatment and, God willing, a cure.
It is hard to say anything with 100% certainty of course. Being here and they being in Argentina makes things much more difficult for us. I know there are a lot of people praying for her and her family, so I am keeping faith in that.
PLEASE PRAY
please pray for my little 2nd cousin (4y) - WAYRA - in argentina.
they went to the hospital in a rush yesterday morning by plane (they NEVER take plane - always bus/train). healthcare is not the best over there. They say she has a fast growing tumor in her belly.
I heard this morning that they have not done the surgery (to remove the tumor)yet. They will be doing another test/exam today on her bone marrow where the tumor seems to be more significant and it goes all the way down to the bottom of her kidneys! The doctors have given them no hope. I don’t know what else to say at this point, except PLEASE PRAY!
they went to the hospital in a rush yesterday morning by plane (they NEVER take plane - always bus/train). healthcare is not the best over there. They say she has a fast growing tumor in her belly.
I heard this morning that they have not done the surgery (to remove the tumor)yet. They will be doing another test/exam today on her bone marrow where the tumor seems to be more significant and it goes all the way down to the bottom of her kidneys! The doctors have given them no hope. I don’t know what else to say at this point, except PLEASE PRAY!
The End of Week #1
Well, I lost 3 pounds!!!
I'm so happy! I didn't stick to it 100%, but I must've done something right. I need to incorporate more exercizing in my daily routine. I have to find a time and all to do it. I always feel great afterwards, I just can't seem to get motovated enough to get up off my butt!
I'm so happy! I didn't stick to it 100%, but I must've done something right. I need to incorporate more exercizing in my daily routine. I have to find a time and all to do it. I always feel great afterwards, I just can't seem to get motovated enough to get up off my butt!
Weight Loss - 1/6/10
Well, today was my first day on the new "plan." I'm using the Slim Fast plan online. It's free. It's easy and It's functional for me. I'm so finicky, this one is great! I really like this plan and hope to stick with it. It's not like it used to be: "a shake for breakfast, a shake for lunch and a sensible dinner." Nope, not at all! I'm actually doing the plan WITHOUT the Slim-Fast products. It's not that I don't like to have chocolate for breakfast, it's that I can't afford to right now.
What did I eat today? You ask. I ate: banana slices w/sugar, tuna salad sandwich, carrot slices, orange, tomato slices, hamburger, green beans, coke zero and water.
I'm full. I stayed full all day.
I didn't exercize today. I wanted to, but with Nathan home in the evenings with me this week, I highly doubt I will get much exercising time in. There's always the weekends and next week.
I hope to be able to keep myself accountable by blogging every day!
179.9 pounds
size 16
What did I eat today? You ask. I ate: banana slices w/sugar, tuna salad sandwich, carrot slices, orange, tomato slices, hamburger, green beans, coke zero and water.
I'm full. I stayed full all day.
I didn't exercize today. I wanted to, but with Nathan home in the evenings with me this week, I highly doubt I will get much exercising time in. There's always the weekends and next week.
I hope to be able to keep myself accountable by blogging every day!
179.9 pounds
size 16
Another Sleepy Sunday
Yes, another sleepy sunday is upon us. And what does today hold? A whole lot of nothing!
Let's see, we start the day by getting up at 9am. Nathan wanted to know if it was time to go downstairs. I told him he can go downstairs any time he wants so long as he's dressed and teeth have been brushed. So, I take my shower, head downstairs and make breakfast (left over pizza from movie night the night before). Yeah, he was thrilled!!!
Doing the laundry, gonna vaccuum a little, clean up the kitchen, some more movies and then off to bed.
What a wonderfully boring day it will be. Amazing all the things you can do when you have no money! he he he
Yeah!
Let's see, we start the day by getting up at 9am. Nathan wanted to know if it was time to go downstairs. I told him he can go downstairs any time he wants so long as he's dressed and teeth have been brushed. So, I take my shower, head downstairs and make breakfast (left over pizza from movie night the night before). Yeah, he was thrilled!!!
Doing the laundry, gonna vaccuum a little, clean up the kitchen, some more movies and then off to bed.
What a wonderfully boring day it will be. Amazing all the things you can do when you have no money! he he he
Yeah!
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